This site is a tribute to Norah Couse, who was born in Crewe on December 30, 1942. She is much loved and will always be remembered.

Norah suffered with PSP for more than 8 years. One of the problems with PSP is that it is so rare but it afflicts about 4000 people in the UK. Correct diagnosis in the first place requires really skilled linking together of a complex series of seemingly unconnected conditions/ problems.

Whilst we treasured every minute that we had with Norah, she had to endure so much distress over those 8 years as she suffered loss of dignity, head shakes, falls, loss of short-term memory, sight, mobility, speech and finally the ability to swallow. So very distressing for Norah and those caring for her. Yet, the cruellest blow is that Norah retained much mental capacity and so understood everything but could not communicate. In those final years and months it was heart breaking to try and understand Norah's needs by simple yes/ no answers or squeezing of the hand. We are sure there is so much she would have liked to have said, and we have no doubt she would have told us she loved us and to be strong, look after each other once she had gone. She would have told us to remember her with  love and affection not sadness and tears and to smile about the fun times.

If something positive can come from Norah's passing, it's that we can raise awareness and support for such a cruel and debilitating disease  that so little is known about and for which research is woefully underfunded.

All donations would be gratefully appreciated in Norah's loving memory. Xx